The Grand Depart!

3 Jul

 

Ace ManHey gang, have you heard that the Tour De France is coming to Yorkshire?

 

Annabel

What is the Tour De France?

 

 

Kick Ass Maracas 

It’s a cycle race that started in 1903 in France. Riders from around the World ride in teams of nine people for 23 days in France for over 2,200 miles!

 

 

MalakWow that’s a long way! What do they win?

 

 

 

 

 

Kick Ass Maracas

Each day is called a ‘stage’ and the person who wins a stage gets a yellow jersey (or cycling top) and they have to give it up if they lose the next stage. You can also win a polka dot jersey for being ‘King of the Mountains’ meaning you raced up the hills the quickest. The person who wins the Tour De France overall gets a Yellow Jersey.

 

 

 

 

Annabel

Are there any women or people with disabilities in the Tour De France?

    

 

 

Kick Ass MaracasNo, only men are allowed to compete and they don’t have any disabled riders.

 

 

 

 

Ace

Everyone should be able to take part! Professionals could help to train people with disabilities. The Paralympics was really inspirational and showed just how good people with disabilities are!

 

 

 

 

Malak

Women are just as good as the men ! They should be able to take part. Olympic Cyclist, Lizzie Armitstead agrees!

 

 

 

 

Annabel

The Tour De France needs to be more inclusive!

 

 

 

 

Ace

Why is the Tour De France coming to Yorkshire?

 

 

 

 

Kick Ass MaracasLots of different places, like Scotland, bid to have the ‘Grand Depart’ which is the first three days of the Tour and Yorkshire won!

 

 

 

 

AnnabelThat’s great! Where will it be?

 

 

 

 

 

Kick Ass Maracas                   Stage 1 is on Saturday 5th July from Leeds to Harrogate

                   Stage 2 is on Sunday 6th July from York to Sheffield

                   Stage 3 is on Monday 7th July from Cambridge to London, finishing outside of Buckingham Palace

 

 

AceCan anyone watch?

 

 

 

 

Kick Ass Maracas

Yes! You can watch anywhere along the route and across Yorkshire, there are lots of great things happening, you can find out more on http://festival.yorkshire.com/

 

MalakI think this is a great way of encouraging people to get out on their bikes!

 

 

 

Ace ManAnd it will put the spotlight on Yorkshire and bring lots of money to the county!

 

 

 

 

Annabel

They should use the money to create better facilities for people with disabilities to give more people access to cycling and sport. Everyone should have the chance to take part!

 

 

 

A-team membersThe A-Team and everyone at CHANGE would like to wish all of the riders good luck this weekend, we will be cheering you on!

 

 

 

 

 

 

 

 

 

Tour De France

Bring back our girls!

2 Jun

#Bringbackourgirls - protest banners made by people with learning disabilities at CHANGE

 

Ace

Hey gang, have you heard that over 200 school girls were kidnapped in Nigeria in April by a terrorist group called Boko Haram?

 

 

Annabel

What is a terrorist?

 

 

 

 

Kick Ass Maracas

Terrorists are people who may hurt other people to get their own way. They may use violence to force other people to do what they want.

 

 

 

Malak

They came in the night, we do not really really know how they did it, but they took the girls.

 

 

 

Kick Ass Maracas

The girls were taken because Boko Haram think that girls should not go to school.

 

 

 

 

Annabel

We’ve heard that people know where the girls are being held but that they cannot get near to them. We are very worried about them, the girls may be scared and they may not be well.

 

 

 

Malak

We want to know what is being done to find the girls!

 

 

 

 

Ace

We want to show our support for the girls. They have already shown they have strength and courage – we must show that we have too.

 

 

 

 

Kick Ass Maracas

Everyone has the right to go to school. It is important that the girls have this right and that they are returned. We want our government to help bring back the girls and to tell us what they are doing!

 

 

 

Malak

How can we show our own support for the girls?

 

 

 

 

Annabel

You can go on Twitter or Facebook and join in the campaign using the hashtag #BringBackOurGirls and call for justice for the Nigerian School Girls!

 

 

KA Maracas

You could also make banners to show your support, like the volunteers at CHANGE.

 

 

 

 

#Bringbackourgirls banners made by CHANGE volunteers

#Bring back our girls banners made by CHANGE volunteers

A-team members

Together we can #BRING BACK OUR GIRLS!

Beyond Barriers – Give disabled people a fair deal in the workplace!

29 Apr

Annabel
 

Hey gang, did you know people have been campaigning about ESA?

 
 
 
Malak
 

What’s ESA?

 
 
 
 
Kick Ass Maracas

ESA stands for Employment and Support Allowance. It’s a type of benefit for people who find it harder to get a job because they have a disability or a problem with their health that they might have for a long time.

 
Annabel

It used to be two separate benefits called Incapacity Benefit and Income Support, but now they are both part of ESA.

 
 
Ace
 

What is the campaign about?

 
 
 
 
Annabel

The Spartacus Network are a group of people with disabilities who are campaigning about disability benefit. They have made a report called ‘Beyond Barriers’.

Malak
 
 

What does the report say?

 
 
 
 
Annabel

It says that people have a lack of support. Did you know only 5% of people on the work programme have actually found work?

 
 
Ace

They have been accused of picking the best people for jobs and other people, including people with disabilities, are being left behind and forgotten about with little or no contact.

 
 
Kick Ass Maracas
 

Another problem is that non-disabled work places are not too friendly for people with long term health conditions.

 
 
 
Annabel

And disabled people with similar abilities and qualifications to non-disabled people are less likely to be in work. They are also paid less and more likely to live in poverty. They also face a lot of discrimination when looking for work!

 
Ace

I’ve had experience of that, people talk down to me, they think disabled people don’t matter, they think that they should have all the power.

 
 
Kick Ass Maracas

I used to work in a workshop. My manager complained about my work a lot and I only got paid 50p for all of my hard work!

 
 
Malak

Did you know that in the 21st Century it is possible to do a lot more? Like flexible working and giving people more support to do their job.

 
 
Annabel
 

Information needs to be accessible and all in one place.

 
 
 
Ace
 

We also need that accessible information in all workplaces.

 
 
 
Kick Ass Maracas
 

We need more places like CHANGE whose business is to ensure people with learning disabilities are co-working together!

 
A-team members
 

How can WE get involved in the campaign?

 
 
 
Annabel

You can go on Twitter or Facebook and join in the campaign using #BeyondBarriers and call for a better deal for people with disabilities!

 
 

Inclusion? Here’s how!

7 Apr

We're going to an NHS Citizen Design Workshop!

Malak

 

Hey gang, there’s an event I’m going to be involved in next week. It’s the NHS Citizen Design Workshop.

 

 

Ace Man

 

What’s that about?

 

 
 
 

Malak

The NHS are changing how they do things and how they plan new ways of working. They want ordinary people to be involved and have a voice about how to do this.

 
 

Kick Ass Maracas

How can they give people a voice and include everyone? Usually we’re not included and decisions are made about us or for us without asking us.

 
 

Ace

Yes usually everything is in jargon and we can’t understand what’s going on in meetings and at conferences. Yeah and things are always too long and so boring! I hate meetings and conferences.

 
 

Annabel

Yes and quite often there aren’t many people with learning disabilities at these events because it’s very hard to join in. Sometimes the venues aren’t very wheelchair friendly either.

 

Malak

Well I’m going along to try to help them try and understand how to make it more inclusive. What do you all think would make it easier for you to be involved?

 
 

Annabel

Well they need to think about how they give information to people. Lots more people could be involved if they made their information easy-read and with pictures to support the words. It would help to have information in easy-read before the event so we know what it’s about and what will happen.

 

KA Maracas

They definitely need to stop using jargon! It would be great to go to a conference where the presentations were done as key points and made clear and simple.

 
 

Ace Man

It would help if people were asked to speak more slowly as well. It would be less boring if there were more breaks so you had time to understand the information.

 
 

Annabel

If they want people to be included and have a voice then they need to think in a person centred way and that means being flexible to people’s needs.

 

A-team members

 
 

We have a lot to offer because our experience comes from the heart and it’s time we were included and had a voice!

I Never Admitted I had a Learning Disability………

31 Mar

Annabel:

The A-team is reblogging this Guest Blog by Shaun Webster, worker with a learning disability at CHANGE because Shaun is one of our heros.

Originally posted on Philipa at Changepeople:

Shaun I am Shaun Webster, European Project Coordinator in CHANGE. I am a person with a learning disability. From my heart I feel very proud to be working in CHANGE. If I didn’t have CHANGE in my life I would be stuck in a dead end job with no power at all. I would be feeling isolated and small with no one taking any notice of me. Now I feel powerful and equal. In the past I used to despise having a learning disability. I used to hide it away. I used to feel embarrassed about it because people used to call me names and abuse me. My dad was embarrassed that I had learning disabilities. If I said that I had a learning disability I felt they treated me like a baby and a second class citizen. Now I am proud that I have a learning disability. I feel that…

View original 529 more words

Pledging to make things better in the NHS

24 Mar
NHS Expo in Manchester last month - Innovation in Health and Care

People with learning disabilities tell it like it is at the NHS Expo in Manchester last month

Malak

I went to the NHS England Health and Care Innovation Expo in Manchester last week.

 

 

Ace Man

Oh, what was that like?

 

 

 

 

Malak

It was really interesting. There were lots of people taking part. There were displays and speakers, workshops and cafes.

 

 

 

 

Annabel

Why were you there?

 

 

 

 

MalakI went with our organisation. We were networking, taking part in group discussions and doing presentations. Some of our group got filmed talking about the work we do about involvement, co-production and people with learning disabilities. There was an area called Speakers Corner where people could take part in discussions about making the NHS better. People were invited to make pledges about how they are going to do this.

 

 

 

 

Ace

What are pledges?

 

 

 

 

Malak

A pledge is a promise to do something. People could write a pledge on a flag about what they will do or write or draw on a graffiti wall to share good ideas.

 

 

 

 

Annabel

I can think of a few things I’d like the NHS to promise to change. What about accessibility when I go to the doctor or hospital. I’d like them to pledge to make reception counters lower for people and think of people who are wheelchair users.

 

 

 

 

Ace

I’d like them to pledge to make the touch screen easier to use at the doctors – I can’t use it easily.

 

 

 

Kick Ass Maracas

I’d like them to make sure all the NHS staff get disability awareness training. They should learn about better communication and how to listen properly. They need to understand that everyone has different communication needs.

 

 

 

 

Ace Man

I want to be treated as a person – not just seen as my disability.

 

 

 

 

Malak

I think it would be good if they thought about giving people accessible information when they need it. You need easy-read information when you go home to help you with taking your medicine, as well as at the doctors.

 

 

 

 

Annabel

These are all things health and social care workers need to think about changing if they want the NHS to be people-centred. They need to listen to people with disabilities.

 

 

 

 

Ace Man

Pledges are good but you have to carry them out. It’s like the A Team. We have all pledged to raise awareness about accessibility and disability issues and we do it!

Personal Budgets – What does it mean?

10 Feb

Ace Man

I’ve been hearing a lot about Personal Budgets, what does this mean?

 

Annabel

Oh, I am just trying to understand that myself as everything is changing.  But it’s about getting money for the care and support I need.

 

 

Malak

I’ve heard it’s supposed to give us more choice and control so we can have a better quality of life – but I only know one person with learning disabilities who has a Personal Budget.

 

 

KA Maracas

Yes, but how is that different from Direct Payments? Are you still getting the money that you need?

 

 

Annabel

Yes I am but I can decide how to use it. It’s about me being at the centre of my care. I can decide what care I want and who’s going to provide that support and care. It’s personal to each person as everyone is different.

 

 

Ace

But why is that better?

 

 

Malak

It’s better because when services are planned they ask the person that who needs them what they want. Also health care and social care professionals are going to work together better to help each person.

 

 

Annabel

I think we might be able to use our Personal Budgets to get more involved in community life, which would be great, because I know lots of people with learning disabilities don’t feel included in their communities.

 

 

Ace

But how are we going to find out about Personal Budgets so that we understand what it is and know what help and support is available? I’ve never seen any easy read information about Personal Budgets.

 

 

Kick Ass Maracas

Neither have I. We need information about Personal Budgets that has pictures and easy words. This would help us to get the right information without relying on our social worker or our support worker to get it for us. Videos would help us to understand too. Then we’d have more power!

 

 

Ace Man

Has it made a difference for you, Annabel?

 

 

Annabel

Yes, I can choose what support I get and also change it to something else when my health changes. I have more freedom to get around because my transport fits round me rather than the timetable of the provider. This make me feel much happier because I am more independent.

 

 

KA Maracas

We will just have to see how it works out for different people as it’s a lot of changes to services and people are a bit worried about how it’s going to work for them.

 

 

Malak

I think we will need good support to understand the changes and how they will affect us. We need Peer to Peer support and training from other people with learning disabilities to help us understand what our rights are, what Personal Budgets are, how we get them and what to do if things go wrong.

 

 

Annabel

Oh, Peer to Peer and easy read information, wouldn’t that be great. I can feel the power!

 

 

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