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Inclusion? Here’s how!

7 Apr

We're going to an NHS Citizen Design Workshop!

Malak

 

Hey gang, there’s an event I’m going to be involved in next week. It’s the NHS Citizen Design Workshop.

 

 

Ace Man

 

What’s that about?

 

 
 
 

Malak

The NHS are changing how they do things and how they plan new ways of working. They want ordinary people to be involved and have a voice about how to do this.

 
 

Kick Ass Maracas

How can they give people a voice and include everyone? Usually we’re not included and decisions are made about us or for us without asking us.

 
 

Ace

Yes usually everything is in jargon and we can’t understand what’s going on in meetings and at conferences. Yeah and things are always too long and so boring! I hate meetings and conferences.

 
 

Annabel

Yes and quite often there aren’t many people with learning disabilities at these events because it’s very hard to join in. Sometimes the venues aren’t very wheelchair friendly either.

 

Malak

Well I’m going along to try to help them try and understand how to make it more inclusive. What do you all think would make it easier for you to be involved?

 
 

Annabel

Well they need to think about how they give information to people. Lots more people could be involved if they made their information easy-read and with pictures to support the words. It would help to have information in easy-read before the event so we know what it’s about and what will happen.

 

KA Maracas

They definitely need to stop using jargon! It would be great to go to a conference where the presentations were done as key points and made clear and simple.

 
 

Ace Man

It would help if people were asked to speak more slowly as well. It would be less boring if there were more breaks so you had time to understand the information.

 
 

Annabel

If they want people to be included and have a voice then they need to think in a person centred way and that means being flexible to people’s needs.

 

A-team members

 
 

We have a lot to offer because our experience comes from the heart and it’s time we were included and had a voice!

Pledging to make things better in the NHS

24 Mar
NHS Expo in Manchester last month - Innovation in Health and Care

People with learning disabilities tell it like it is at the NHS Expo in Manchester last month

Malak

I went to the NHS England Health and Care Innovation Expo in Manchester last week.

 

 

Ace Man

Oh, what was that like?

 

 

 

 

Malak

It was really interesting. There were lots of people taking part. There were displays and speakers, workshops and cafes.

 

 

 

 

Annabel

Why were you there?

 

 

 

 

MalakI went with our organisation. We were networking, taking part in group discussions and doing presentations. Some of our group got filmed talking about the work we do about involvement, co-production and people with learning disabilities. There was an area called Speakers Corner where people could take part in discussions about making the NHS better. People were invited to make pledges about how they are going to do this.

 

 

 

 

Ace

What are pledges?

 

 

 

 

Malak

A pledge is a promise to do something. People could write a pledge on a flag about what they will do or write or draw on a graffiti wall to share good ideas.

 

 

 

 

Annabel

I can think of a few things I’d like the NHS to promise to change. What about accessibility when I go to the doctor or hospital. I’d like them to pledge to make reception counters lower for people and think of people who are wheelchair users.

 

 

 

 

Ace

I’d like them to pledge to make the touch screen easier to use at the doctors – I can’t use it easily.

 

 

 

Kick Ass Maracas

I’d like them to make sure all the NHS staff get disability awareness training. They should learn about better communication and how to listen properly. They need to understand that everyone has different communication needs.

 

 

 

 

Ace Man

I want to be treated as a person – not just seen as my disability.

 

 

 

 

Malak

I think it would be good if they thought about giving people accessible information when they need it. You need easy-read information when you go home to help you with taking your medicine, as well as at the doctors.

 

 

 

 

Annabel

These are all things health and social care workers need to think about changing if they want the NHS to be people-centred. They need to listen to people with disabilities.

 

 

 

 

Ace Man

Pledges are good but you have to carry them out. It’s like the A Team. We have all pledged to raise awareness about accessibility and disability issues and we do it!

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