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Personal Budgets – What does it mean?

10 Feb

Ace Man

I’ve been hearing a lot about Personal Budgets, what does this mean?



Oh, I am just trying to understand that myself as everything is changing.  But it’s about getting money for the care and support I need.




I’ve heard it’s supposed to give us more choice and control so we can have a better quality of life – but I only know one person with learning disabilities who has a Personal Budget.



KA Maracas

Yes, but how is that different from Direct Payments? Are you still getting the money that you need?




Yes I am but I can decide how to use it. It’s about me being at the centre of my care. I can decide what care I want and who’s going to provide that support and care. It’s personal to each person as everyone is different.




But why is that better?




It’s better because when services are planned they ask the person that who needs them what they want. Also health care and social care professionals are going to work together better to help each person.




I think we might be able to use our Personal Budgets to get more involved in community life, which would be great, because I know lots of people with learning disabilities don’t feel included in their communities.




But how are we going to find out about Personal Budgets so that we understand what it is and know what help and support is available? I’ve never seen any easy read information about Personal Budgets.



Kick Ass Maracas

Neither have I. We need information about Personal Budgets that has pictures and easy words. This would help us to get the right information without relying on our social worker or our support worker to get it for us. Videos would help us to understand too. Then we’d have more power!



Ace Man

Has it made a difference for you, Annabel?




Yes, I can choose what support I get and also change it to something else when my health changes. I have more freedom to get around because my transport fits round me rather than the timetable of the provider. This make me feel much happier because I am more independent.



KA Maracas

We will just have to see how it works out for different people as it’s a lot of changes to services and people are a bit worried about how it’s going to work for them.




I think we will need good support to understand the changes and how they will affect us. We need Peer to Peer support and training from other people with learning disabilities to help us understand what our rights are, what Personal Budgets are, how we get them and what to do if things go wrong.




Oh, Peer to Peer and easy read information, wouldn’t that be great. I can feel the power!




Will Disabled People be worse off? Changing DLA to PIP

12 Mar
Disability Living Allowance Demonstration

Disability Living Allowance Demonstration

Ace is worried


I am worried about PIP and how it will affect me and my family. I don’t know why they are changing DLA – I wish they would leave it as it is.

Malak is frightened about going for a DLA assessment

 ear1sml  I am frightened of having to go for a new assessment. Being asked lots of questions puts me under pressure and makes me anxious.

It's another attack on disabled people

 ear1sml  It feels like another attack on Disabled People and the cuts in our benefits. I don’t think they asked Disabled People to give their views on the changes. They don’t listen to us and our experiences.

We have to fight against the cuts

ear1sml  I’m worried that my means of getting out and about will be taken away and I’ll be stuck in the home, like a prisoner. We have to fight against being made poorer and not having a fair chance. We have to show how this affects our equal rights.

Disabled people stop the traffic in protest!

13 Feb
Disabled people stop the traffic in London's Oxford Circus (28-01-2012) in protest of the governments cuts to welfare benefits
Disabled people stop the traffic in London’s Oxford Circus, 28th January 2012

 Ace is over the moon

Last Saturday I went to London with Annabel to join in an action about the cuts.


Annabel asks what a Power Changer is

  It was a demonstration against the cuts to disability benefits.  The cuts discriminate against disabled people.  We chained ourselves in a line across the road to stop the traffic.

Ace chained himself to other disabled people and they stretched across the road

We wanted to make people in Britain realise that the cuts are wrong and disabled people are suffering.



KickAss Maracas says it's really good to see disabled people being strong, clever and having disability pride.

I saw it on the news. What the government is doing makes me mad.  But it was really good to see disabled people being really strong, clever and having disability pride. 

Malak says It was great to see disabled people speaking up for our rights. You can watch it on the Guardian website.

I watched a film about it on the internet.  It was great to see disabled people speaking up for our rights.  You can watch it on the Guardian website: click here.

Disability benefit cuts – we won!

3 Jan

Ace is over the moon I am really over the moon that we won against the Government about the Mobility Allowance part of disability living allowance. The Government are not going to take away the Mobility Allowance from disabled people who live in residential care.

We wrote about this in our blod in May and in November 2011

We wrote about this in the blog in November 2011’s archive called, The Hardest Hit – Thousands march against disability benefits cuts. Annabel also went to London in May 2011 to protest about the cuts – see our blog in May 2011, Disability March on London!


KickAss Maracas says lets go party!

Congratulations everyone, we have won! Let’s go celebrate and have a party!



Annabel is proud of all disabled people who have spoken out against the cuts!

This shows how great it is that disabled people and our friends and family in Britain have spoken up for our rights and won!

The Hardest Hit – thousands march against disability benefit cuts

7 Nov

KA Maracas has been on a demonstration

KA says:

On Saturday 22nd October I went to a march in Leeds.


Leeds Hardest Hit demonstration 22nd October 2011



 Ace says:

What was it about?


Kick Ass Maracas

KA says:

It was about the disability benefit cuts.  It was a big success – over 400 people came. The speakers were Rt Hon Hilary Benn MP, Susan Hanley, Robyn Brockie, Paul Williams, Sheila Banks, Andy Smith, Steve Winyard and Tim McSharry. They all did a great job.


Malak was on holiday at the time

Malak says:

I was on holiday in Portugal but I saw it in the papers. I thought what a good job they did and I felt inspired that people with learning disabilities were speaking up for our rights.



KA says:

It was widely reported on local TV, radio, in the papers and on the internet.

 Across the country over 5,500 people went to the 12 marches, sending a strong message to the government about cuts to disability benefits and services

Annabel says:

Across the country over 5,500 people went to the 12 marches, sending the strongest message to the government about cuts to disability benefits and services. I went to the one in Manchester, it was great! There were speeches and music. Cherylee Houston who is a disabled actress who plays Izzy in The Street was also there.

To find out more go to

Follow The Hardest Hit on facebook

Here are some more photos from The Hardest Hit demonstrations around the country:

Bristol Hardest Hit demonstration 22nd October 2011


Cardiff Hardest Hit demonstration 22nd October 2011


Edinburgh Hardest Hit demonstration 22nd October 2011


Manchester Hardest Hit demonstration 22nd October 2011


Norwich Hardest Hit demonstration 22nd October 2011



Brighton Hardest Hit demonstration 22nd October 2011


Newcastle Hardest Hit demonstration 22nd October 2011


Police fluff it up!

6 Jun

Ace says:

There has been a bit of news about the Pilkington case. It is a famous case which we have talked about on the blog.

Fiona Pilkington and her daughter Frankie Hardwick

Fiona Pilkington and her daughter Frankie Hardwick

5 police officers are in trouble because they did not help the Pilkington family who phoned for help over 30 times.

This is good because it will make the police do a better job of helping disabled people who are being bullied.

  KA Maracas

K.A.Maracas says:

Talking about the police not doing their job properly there has also been some news about the Stephen Lawrence case. 

Stephen Lawrence

Stephen Lawrence

The Stephen Lawrence case is also famous like the Pilkingtons because it made people realise how bad racist hate crime is.

Stephen Lawrence was on his way home with his friend  Duwayne when they were attacked by a group of white lads. He was stabbed and died in this racist attack.

The police didn’t do a good job so the bullies got away with it.

This was in the news alot because it made everyone realise that we have to do something about racism.

There has been some changes in the law so that the men who did it are going back to court later this year.

We think this is good because we want bullies to get into trouble and not just get away with it.

You can find out more about this on this website: 

Disability March on London!

23 May
10,000 Disabled People March on London protesting cuts to disability benefits and services - May 2011

20,000 Disabled People March on London - May 2011


Annabel says:

“Recently I went London to join with about 20,000 Disabled People to attend a march in Westminster.

“The march was about cuts to benefits including the mobility part of Disability Living Allowance and to other disability services.

“It felt great to be with other Disabled People to speak up for our Rights.”

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