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Personal Budgets – What does it mean?

10 Feb

Ace Man

I’ve been hearing a lot about Personal Budgets, what does this mean?

 

Annabel

Oh, I am just trying to understand that myself as everything is changing.  But it’s about getting money for the care and support I need.

 

 

Malak

I’ve heard it’s supposed to give us more choice and control so we can have a better quality of life – but I only know one person with learning disabilities who has a Personal Budget.

 

 

KA Maracas

Yes, but how is that different from Direct Payments? Are you still getting the money that you need?

 

 

Annabel

Yes I am but I can decide how to use it. It’s about me being at the centre of my care. I can decide what care I want and who’s going to provide that support and care. It’s personal to each person as everyone is different.

 

 

Ace

But why is that better?

 

 

Malak

It’s better because when services are planned they ask the person that who needs them what they want. Also health care and social care professionals are going to work together better to help each person.

 

 

Annabel

I think we might be able to use our Personal Budgets to get more involved in community life, which would be great, because I know lots of people with learning disabilities don’t feel included in their communities.

 

 

Ace

But how are we going to find out about Personal Budgets so that we understand what it is and know what help and support is available? I’ve never seen any easy read information about Personal Budgets.

 

 

Kick Ass Maracas

Neither have I. We need information about Personal Budgets that has pictures and easy words. This would help us to get the right information without relying on our social worker or our support worker to get it for us. Videos would help us to understand too. Then we’d have more power!

 

 

Ace Man

Has it made a difference for you, Annabel?

 

 

Annabel

Yes, I can choose what support I get and also change it to something else when my health changes. I have more freedom to get around because my transport fits round me rather than the timetable of the provider. This make me feel much happier because I am more independent.

 

 

KA Maracas

We will just have to see how it works out for different people as it’s a lot of changes to services and people are a bit worried about how it’s going to work for them.

 

 

Malak

I think we will need good support to understand the changes and how they will affect us. We need Peer to Peer support and training from other people with learning disabilities to help us understand what our rights are, what Personal Budgets are, how we get them and what to do if things go wrong.

 

 

Annabel

Oh, Peer to Peer and easy read information, wouldn’t that be great. I can feel the power!

 

 

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Co-production – what is it?

10 Dec

Kick Ass Maracas

I’m a bit fed up and angry with people not including us! Why are we never asked for our opinion?

 

 

Ace Man

Things need to change!

 

 

Annabel

I agree things can’t stay the same. But have you heard about co-production?

 

 

KA Maracas

No I haven’t – what is co-production?

 

 

Annabel

It means including people in a real way so they can be involved and have a say in things that affect them.

 

 

Malak

Oh, that sounds brilliant!

 

 

Annabel

It’s not just about helping make the decisions, it’s about being employed to make it happen. People with learning disabilities need to be employed in the services that affect their lives.

 

 

Kick Ass Maracas

That’s a great idea!

 

 

Ace

I’d like to be involved in that!

 

 

Malak

It would be hard work to change people’s attitudes but it would be worth it. If we were involved in this way, we could build our skills and get more confidence.

 

 

Ace Man

Services would become much better if we had a voice and involvement in creating them.

 

 

Annabel

That would help people change their attitudes. Then they might see what people with Disabilities CAN DO rather than just seeing what we CAN’T DO!

Will Disabled People be worse off? Changing DLA to PIP

12 Mar
Disability Living Allowance Demonstration

Disability Living Allowance Demonstration

Ace is worried

ear1sml 

I am worried about PIP and how it will affect me and my family. I don’t know why they are changing DLA – I wish they would leave it as it is.

Malak is frightened about going for a DLA assessment

 ear1sml  I am frightened of having to go for a new assessment. Being asked lots of questions puts me under pressure and makes me anxious.

It's another attack on disabled people

 ear1sml  It feels like another attack on Disabled People and the cuts in our benefits. I don’t think they asked Disabled People to give their views on the changes. They don’t listen to us and our experiences.

We have to fight against the cuts

ear1sml  I’m worried that my means of getting out and about will be taken away and I’ll be stuck in the home, like a prisoner. We have to fight against being made poorer and not having a fair chance. We have to show how this affects our equal rights.

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